Palliative Care, Fluorescent Sky Lights, & Gratitude…

Terri Wingham is the founder and CEO of A Fresh Chapter, a cancer survivor, and someone who believes that we are not defined by the most difficult aspects of our story.

Written by Terri Wingham | August 2, 2011

Palliative Care.

Who knew two words on a little sign above a non descript doorway could make my blood run so cold it feels like someone has ripped an icicle spear from a wintery roof and stabbed it into my carotid artery. Every second I stare at the sign, the drip, drip, drip of fear slides through my veins.

I look away in case in some messed up way, staring at it for too long will foreshadow my future. An image crystallizes in my mind of my friends and family bringing their young children to see me in my prison while I spend what’s left of my youth, waiting for “it” to be over.

To escape this morbid thought, I search for the Information Desk and speed-walk under florescent lights installed in the shape of sky lights to get there. Patients in draughty hospital gowns lean against IV poles and visitors wear the masks of soldiers in the midst of battle.

Just make it to the information desk…just make it to the information desk, I whisper to myself. When I get there, a white haired woman wearing a Wal-mart inspired blue volunteer vest gives me a bright smile and asks how she can help. I almost grab her by the wrists, stare into her grey eyes and say, “you can help by promising me I DO NOT have the start of ovarian cancer on top of my recent breast cancer and I WILL NOT end up in Palliative Care. Ever.” Instead, I ask her to direct me to Diagnostic Imaging area for my 2pm ultrasound appointment.

She points past the jaunty “Walk of Honour” sign, through the corridor I just came from, to a bank of elevators directly across from the Palliative Care wing. I give her my sweetest, I am not terrified thank you smile and don’t look up again until I am on the elevator descending into the bowels of the building.

* * *

“Theresa Wingham?” What a pleasant surprise! It has been less than 15 minutes and the little sign when I checked in promised me a wait time of up to 2 hours. As I follow the scrub-wearing ultrasound technician around a dimly lit corner, she asks if my bladder is full and I nod. A vision of this same corridor over a year and a half ago when I lay in my hospital stretcher with a bladder so full, my face glistened with sweat and I wondered if I might explode, flashes through my mind.

She doesn’t need to give me instructions as I lie on the bed, lift my shirt, and pull my jeans low on my hips. As she squeezes warm jelly on my stomach, the fear of what she might find is so thick, I can almost chew it. In order to prevent myself from jumping off a mental cliff into complete hysteria, I ask questions.

“How’s your day going? How many outpatients do you get here? Usually I go to the medical center across the street. I wonder why I had to come here. Do you know?” I can’t stop talking.

“Almost no outpatients, except for emergencies, the rest are all in patients,” is the only response that registers as she presses the probe deep into the tissue above my left ovary. Although I have tried to forget about the results of my last ultrasound, her answer confirms how serious this is.

When I crane my neck towards the screen in a ridiculous attempt to evaluate the health of my ovaries, the blackness broken up by shadowy grey blobs and white squiggly lines scares me even more. Is that grey blob, right there, the start of cancer?

In the midst of imagining a revival of my bald head and grey chemo complexion, she says, “well the good news is the cyst is gone. I need you to roll over because I want to check your kidneys.”

Is she lying? Is she incompetent and has somehow checked the wrong side? 

“You mean I have no cyst anymore? On either side? Really? It’s gone?” Shock makes me skeptical of her expertise.

When she nods and I almost leap off the table, her eyes dart between mine and the screen and she clears her throat in an almost nervous way. “Well, I’m not your doctor, so you need to wait for your official results, ok? But yes, no cyst.”

My grin feels like it could split my face in half. She tells me I can go and light headed with relief, my hands press up against the deep purple wall for support as I wait for the elevator. Back under the main floor’s “skylights”, my knees give out. On a padded bench in the carpeted corridor, I lean towards my shoes and breathe in the recycled air as I listen to the buzz of the pop machine, the ping of the elevator, and the click of sandalled feet.

When I look up, the Palliative Care sign is still there, but this time I am grateful to see it. Grateful for today’s reminder to live in the moment. To seize every opportunity in life because none of us know what tomorrow might bring.

So, it’s back to plotting my next adventure and I hope in October I can somehow take you on a round the world journey, but for now, I will put one foot in front of the other and appreciate every moment of my cancer free (hopefully forever) life.

What about you? How do you plan to take advantage of the time you have left on this planet? A friend posted the photo above on Facebook and I had to share it with you. As Mary Oliver says, “What is it that you plan to do with your one wild and precious life?” 

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Comments (12)
  • Marie Ennis O'Connor • August 3, 2011

    This is my absolute favorite quote of all time from my absolute favorite poet of all time! So happy at your good news and looking forward to going on your next “wild and crazy” adventure with you xxxx

  • Terri Wingham • August 4, 2011

    Thanks so much – it only figures that we love the same quote by the same poet 🙂 I love how much we have in common and I’m so looking forward to sharing my adventures. Who knows – maybe this time we can figure out a way to meet in person. Big hugs from the other side of the Atlantic!
    T
    xo

  • Marie Ennis O'Connor • August 12, 2011

    Would LOVE that xxx

  • Philippa (Feisty Blue Gecko) • August 3, 2011

    Oh my goodness this resonates so much with me I can almost feel the thud! I am in a right “seize the moment” time. It was my birthday yesterday and I have been up to antics in Cambodia, careering round temples and generally having a whale of a time. But the underlying sentiment is somewhat more sinister. Yes, seize the day today – because you know what? Who knows what tomorrow will bring. I am terrified of the future (thank you horrible cancer) but have been prompted to have a ball today because I do not want to look back if (and I know that is a big “if”) the beast were to come back and think – “why did I not have a good time when I was well? So I am!

    I would love to hear of your plans for next year – if Asia features then do let me know….. Very warm hugs from the rainforest temples
    P (Indiana Jones Gecko 😉 ) xxx

  • Terri Wingham • August 4, 2011

    Philippa – Thanks for the note – I know how much you get it and I’ve been so happy to follow your own seize the moment adventures via Facebook. It looks like an amazing trip! My plans right now are to be as spontaneous as I can about this trip, which is scary for me 🙂 I know I’m going to start in the USA and visit friends in Atlanta, NY, and Boston, and then hopefully over to Europe for awhile. I know I would like to make it to Asia and Africa and I really want to do some more international volunteering. I just need to figure out a way to finance it and pull it all together. I am open to any ideas you might have! From one adventurer to another – enjoy every second of it!
    T
    xo

  • Philippa (Feisty Blue Gecko) • August 3, 2011

    and of course, I cannot tell you how glad I am to hear that the scans were clear………..
    That comes first! Big hugs x

  • DebbieWWGN • August 3, 2011

    OMG Terri (I’m channeling my 17-year old daughter here), I am so, so happy for you. I can feel your relief. I went through a similar experience a few months ago. I’ve been reluctant to write about it – which is funny considering what I blog about But, it’s just so overwhelming it’s almost too much. Once again, however, I think you will inspire me and I’ll be writing about it soon. Right now, however, I’m just going to luxuriate in your good news! Hurrah for you!

  • Terri Wingham • August 4, 2011

    Thanks Debbie – love the OMG channeling 🙂 Look forward to hearing your own similar story, when you feel up to writing about it. So great connecting with you lately and I look forward to keeping in touch! Have a great weekend. Terri

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  • lauren • August 9, 2011

    Wonderful post! Just catching up after being away and so get the terror, every single stinking time something comes up, I am miles ahead figuring how chemo will fit into my spring…that is wonderful PTSD for sure. But yes it’s about what you said, this one wild and precious life…golly that quote resonates with us, it is a fave of mine too….

  • Terri Wingham • August 10, 2011

    Thanks so much Lauren! It’s always nice to connect with you and to know that we can all relate to the PTSD! Hope you are having a great summer and had a good trip away.
    Chat soon,
    T
    xo

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