Donna’s Legacy – How A “Little Thing” Made All The Difference
Although we shared the same middle name and the same DNA, it took 11 years for us to meet.
She was the elusive second cousin I referred to in doctors’ appointments when discussing the mutated gene dotting my family tree. The one my Grandmother told me about over cups of steaming tea on Sunday mornings. The one I thought of with every trip into the depths of the MRI machine.
Donna blazed a trail for me. She faced breast cancer and won. Had a wonderful husband who loved her through it. Went on to have a beautiful baby girl. As I looked over my shoulder – desperate to outrun cancer – her story gave me solace. Even if cancer caught me, maybe I would still be ok.
I was diagnosed in 2009. With no pre-tense of having the answers, Donna emailed me and offered support. In the course of a 30-minute phone call on the night before my first round of chemotherapy, she crossed the divide from stranger to friend. She laughed when she told me that she had hoped for the super model chemo diet, but instead gained weight because Big Macs seemed to be the only thing to quell the nausea. She didn’t take away my fears, but she made being young, bald, and sick feel less alien.
Our next phone call came on the eve of my double mastectomy. Consumed by fear of the pain and how my mangled body might appear, I couldn’t articulate the swirl of rage and terror to anyone else. No one got it. Except Donna. She walked me through “what to expect when expecting your breasts to be removed” in a time when my friends were all reading, “What to expect when you’re expecting”.
Then came my final surgery. Finally – freedom from the hold breast cancer had on me for 10 years! Before I recovered enough to pick up the phone, she emailed me with this news: I now have ovarian cancer, Stage 3C, aggressive. I was devastated.
A thief. Cancer once again slipped in, but this time it robbed her of her future. While my world expanded, hers contracted.
For the next four years, we would trade between counsellor and counselled. In those moments when she thought her days were numbered, I would swear that she would beat the odds. Emerge victorious. Her health would stabilize and she would join me for an Odyssey Program in India. She would go back to work. Plan family vacations. See her daughter graduate, get married, and have audacious dreams of her own.
Instead she got stolen memories. Restricted possibilities. Short respites between endless bouts of treatment.
A month ago I flew in to see Donna on my way to a conference in Chicago. Even fatigued from a raging infection and imprisoned in her hospital bed, she wanted to hear all of the updates from A Fresh Chapter. What I was dreaming about. Where we would launch our next program.
As I filled her in on plans for Cape Town in November and an expansion opportunity in Peru, she shook her head like she always did, “I don’t know how you do it, Terri. Listening to you makes me tired.”
What I couldn’t say was that I was doing it for both of us.
When I reached down to wrap my arms around her feather-like shoulder blades, I knew it was goodbye. She knew it too.
On Sunday, I heard the news. My friend. My cousin. My guide through life with cancer. She has now blazed a trail from this world to the next.
I will miss her forever and carry her with me always.
The hand she reached out during my darkest hours did more for me than she will ever know. Donna would be the first to say that those calls to me were no big deal. But, it is the “little things” that transform lives. It was only because she showed up for me that I am able to show up for the people of our tribe. A Fresh Chapter and the lives we will continue to touch will always be a piece of Donna’s legacy.
Comments (17)
Hi Terri, my name is Erin Kelly, and I am your cousin Mike Kelly’s daughter. I had a preventative double mastectomy as few years ago, as I am BRCA-1 positive like many of the women in our family. Donna was always the kind of cautionary tale when we talked about this gene, my “cousin who got breast cancer so young.” But here’s the thing…I never really knew her. I knew *OF* her, of course, since she was close with my aunts, but I never had the chance to have a real relationship with her, which I definitely regret. She sounds like she was a pretty amazing woman. I’m not really sure how to say this, but I am grateful to Donna because her struggle with cancer made my family more proactive about having us checked and tested for the gene, and really prompted me to have the surgery myself. I hope that Donna’s story will convince all the young women in our family to be tested for the gene so that we can avoid such a tragic outcome.
Erin: My maiden name is Kelly…our BRCA1 mutation is on my Father’s side. Not sure if we are related in any way…as Kelly is like ‘Smith’ in many ways. I am thrilled however that there are some Kelly’s being proactive out there…not my story wish it was. I am lucky however…6 years since my dx in August 2009 (with 2 rec. / I am now in my longest most wonderful remission ever) I work hard every day to educate and empower women in my community….here’s my story https://www.aclu.org/video/fight-take-back-our-genes
Continue talking about your journey! We Kelly’s are strong women! All the Best! Kathleen (Kelly) Maxian
Kathleen,
We met at ASCO last year. How crazy to think that we might be related. Thank you for your comment and I’m thrilled to hear that you are in the longest most wonderful remission ever:) That is fantastic news!!! Your video is powerful:) Thank you for sharing.
Your courage, compassion and your capturing of Donna’s character is remarkable. In this difficult time.
One more heavenly advocate. One more who has gone before.
Love you!
D
Terri, I am so sorry to read of your loss xxx
Thank you my sweet friend. xo
Terri, thank you for this beautiful tribute to Donna. She was an inspiration to so many, as are you. Mary Brown, Donna’s cousin.
Terri,
I’m sending you and your family love and light. I’m grateful that we can all learn from Donna, now through you. Big and gentle hugs and tears too.
Terri, This is beautiful! Thank you so much. i know that you
and Donna had a special relationship. God bless!
Love You.
Thank you Agnes. It was so special to see you. Sending love and blessings to all of you. Terri xo
[…] put to rest. Like a jumbled game of pick-up-sticks, I can’t separate the old sadness from the fresh grief of my cousin Donna’s passing from the rage at the DNA mutation. This cellular deformity that has the doctor advising me to […]
I’m so sorry for your loss of Donna. Thank you for sharing her story. We all have been touched by someone special in our lives and we get to start a different chapter through all our cancer journeys.
Thank you Laura. So grateful to have people like you in our community. Looking forward to the chapters ahead.
I am so sorry to hear that Donna passed away. I met Donna and Brigitte in a class for new mothers in 2004. She was lovely and a wonderful mother. I am now going through my own struggle with cancer. Your words and touching and inspiring.
Andrea – Thank you for your comment and for sharing that you knew Donna. I’m sending some light your way for your current struggle. Terri xo
Hi Terri I am married to your cousin Jack Kelly. He is a cousin to Donna. Your tribute to her is amazing. She was an amazing person. Cancer has hit so many and its in my family as well. My sister died of pancreatic cancer, I have cousins affected by this disease as well. I hope you are doing well. Thanks for posting this for Donna.
Denise – Thank you so much for sharing your comment. So many of us were touched by Donna and her life. Sending love to all of you in the Eastern side of the Kelly clan. Best, Terri