Even Death Unites Us…

Terri Wingham is the founder and CEO of A Fresh Chapter, a cancer survivor, and someone who believes that we are not defined by the most difficult aspects of our story.

Written by Terri Wingham | February 7, 2012

Has my title scared you off yet? The topic of death, especially for anyone who has lived through hearing the words, “you have cancer”, can make even the most resilient of us squirm in our chairs. With a chalky mouth and a thready pulse, we look for an exit from the room, the conversation, and the risk that one day we will wake up with a unexplained pain and a doctor will pull an x-ray out of it’s sterile envelope, slide it onto a lit surface, and show us a colony of little metastases hunkered down deep in our bones.

In some ways, the deluge of pink ribbons and announcements of bright and shiny 5-year survival statistics has lulled us (or maybe it’s just me) into a fairytale land where we can almost convince ourselves that surgeons dressed in crisp scrubs and oncologists packing an arsenal of chemotherapy drugs will protect ALL of us from the risk of eventual death. But, if you heard the buzz on February 4th about World Cancer Day, you might know the truth. “More people die from cancer than from AIDS, malaria, and tuberculosis combined. Each year globally, 12.7 million people learn they have cancer, and 7.6 million people die from the disease. Even more alarming, the World Health Organization projects that without immediate action, the global number of deaths from cancer will increase by nearly 80% by 2030, with most occurring in low- and middle-income countries.”

I know – intense information to read while sipping your morning coffee. Often I shield you (and maybe myself) from the darker side of the story. I find ways to inject humour and soften the edges of the harsh realities I sometimes experience while on the road. But, before your eyes glaze over and you click on the little x at the top of this post, in search of the latest news or celebrity gossip, stay with me…because today, I want to share with you a story about compassion and HOPE.

If you have read A Fresh Chapter for awhile, you might know about my good friend and coping mechanism, DENIAL. Typically, I avoid thinking or reading or focusing on a world involving words like metastatic or palliative (Palliative Care, Fluorescent “Sky” Lights & Gratitude) because of my *incredibly rational* logic that if I think too much about this terrifying world, the universe will hand me a one-way ticket into it.

For any of you other avoid-thoughts-of-death-at-all-costs kind of people, maybe you can imagine the duelling butterflies in my stomach as I wove up a crumbling staircase, crowded with forty to fifty squatting people, in search of the first floor and office of Dr. Quach Thanh Khanh, Vice Director of the brand new Palliative Care Unit at HCM City Cancer Hospital. Looking every inch, the only lost, white, foreigner in a Vietnamese hospital, I stared at the characters on the sign and tried to gauge whether I had arrived in the right place or not. Luckily, my cheap Nokia mobile phone buzzed and I saw Dr. Khanh waving at me through the crowd.

He led me through an onslaught of patients, caregivers, and nursing staff and then gestured for me to take a seat on one of the mismatched chairs scattered around the long boardroom table. The room, the heat, and the noise faded away as he asked about my story and then finally gave me the chance to hear his.

After eight years as a Radio-Oncologist, specializing in head and neck cancers, a chance meeting with Dr. Eric L. Kraukauer of the Harvard Medical School Centre for Palliative Care shifted the course of Dr. Khanh’s life forever.

As recently as a year ago, in hospitals across Vietnam, if an oncologist had exhausted all known treatment for a person, that patient was sent home to die with with no drugs to manage the pain and no emotional support for either the patient or their caregivers. Now, after an intensive course in Palliative Care, Dr. Khanh and his team use Dr. Krakauer’s model to run the first Palliative Care Program in HCM City.

As we wrapped up our conversation about cancer survival rates, hospital policies around spiritual support, and the protocols of palliative care, Dr. Khanh paused to look down at the ground for a moment.

When his eyes next met mine, he softly said, “I have a big dream too.”

The quiet intensity in his words and the hope shining in his eyes made my eyes fill and a lump form in my throat.

“What is your dream?” My voice trembled as I asked the question.

“I dream that one day, no cancer patient in HCM City will ever have to die in pain or to die alone.” His voice resonated with such conviction that I now had to bite down hard on my bottom lip in an attempt to reign in the tears threatening to tip over onto my cheeks.

His sincerity and dedication to alleviating the suffering of others inspired me more than I can articulate in this little post. For the next hour, I had the privilege of seeing the Palliative Program in action as we visited the home of a woman dying from metastatic breast cancer. Throughout our time with her, Dr. Khanh spoke to the patient (and her daughter) as if they were the only people who existed in the world. Even though I couldn’t understand the words, I did not feel even an ounce of pity in the exchange, but instead saw only genuine kinship and compassion. Even though Dr. Khanh will not save this woman’s life, he and his team will ensure she dies with dignity and in as little pain as possible. As I write these words, four days later, the screen blurs and I am still surprised by how much the feeling of connection and hope impacted me when I had braced myself to witness only sadness and fear.

Unfortunately, the reality of cancer and palliative care hit even closer to home today when I heard the news about the passing of two of my favourite Breast Cancer Bloggers. Susan Niebur of Toddler Planet and Rachel Cheetham Moro of The Cancer Culture Chronicles both died this week and my inbox and my heart will never be the same. Both of these women shared their beautiful writing, their quick wit(s), and their truest selves with a large community of readers both inside and outside the cancer world.

As I witness the devastating affects of cancer both here in Vietnam and among my tight knit group of breast cancer friends, I can’t help but notice that even across different continents, languages, and cultures, we are all united by our compassion for each other and by our grief. Whether we come from Vietnam, or a city in North America or Europe, we all experience sadness over the loss of loved ones, hope for a cancer-free future, and a desire to live meaningful lives.

The work of Dr. Khanh, and the writings of Susan and Rachel will continue to touch the lives of so many people. I hope their stories inspire you to think about how you can live a life filled with even more compassion and purpose. I know each of them will continue to inspire me.

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Comments (29)
  • M • February 7, 2012

    Although I clicked the “like” button it doesn’t begin to describe what I am feeling!! “Moved beyond words” is more accurate! Is there a button for that??

  • Terri Wingham • February 8, 2012

    Thank you so much for your sweet comment. I was near tears for most of the writing of this post and really most of my time in the hospitals at HCM City. It’s such an honour and a privilege to be here and to have the chance to tell these stories.
    Big love to you.
    T
    xo

  • Stacey • February 7, 2012

    Teri, no words for you. You describe it all perfectly. United across the world and in our desire to stop breast cancer. I find you and your journey quite inspiring. Thank you.

  • Terri Wingham • February 8, 2012

    Stacey,
    Thank you so much for your comment. I am so grateful to have you along for the ride and together, I know, we will all get closer to a day when breast cancer is a thing of the past.
    Love and light to you.
    T. xo

  • BreastCancerSisterhood.com • February 7, 2012

    I think we’re all afraid of metastasis, but Susan & Rachel’s unexpected deaths have made me realize I need to talk about and write about metastasis because that IS the heart of the cure. It’s not Stage I, II or III, but that Stage IV lifeline that halts cancer, that’s actively growing, in it’s tracts.

    Take good care of yourself, and stay safe. We don’t want to lose another friend.

    Love,
    Brenda

  • Terri Wingham • February 8, 2012

    Brenda,
    I could not agree more. Their deaths have made me even more inspired to support ALL of our sisters AROUND the world, regardless of their stage or current address.
    I will be safe and I look forward to seeing you again soon (I hope).
    Much love and light to you.
    Terri
    xo

  • Jody Schoger • February 7, 2012

    Teri,
    I love reading about your encounters with cancer around the world. The farther along I go in survivorship the less afraid I am of my own recurrence than NOT doing enough in my lifetime to educate and empower women to help in the fight against this disease.

    Not all breast cancers are equal nor is access to treatment, as you very well have witnessed. Even the most advanced and best possible treatments available were no match for the virulent disease that both Rachel and Susan had.

    The pain of their loss, and the loss of any beloved individual, is universal.

    Thank you for a lovely post,
    jms

  • Terri Wingham • February 8, 2012

    Jody,
    Thank you so much for your comment. I love how perfectly you have summed it up. Whether it’s love, grief, hope, or joy, I witness so many universal emotions while on the road and it’s a privilege to share them here. I value all of the very important work you do in educating and empowering women to fight the disease. You inspire me. And…Rachel and Susan have inspired me to do more for our sisters around the world who are faced with Metastatic breast cancer. They should never feel forgotten or alone.
    Big hugs to you as you continue to process the loss. Even with the support of a community, grief is an uphill battle.
    Sending you love and light.
    Terri

  • Janette908 • February 7, 2012

    I am so sorry dor your losses. When I was actively in treatment, I lost an another patient while in Chemo.I still am near teara on a new diagnosis or death. Next week I have a CAT coming up and hopefully April will be my fifth year of remission Im a Non Hodgkins L suevivor.

  • Terri Wingham • February 8, 2012

    Thank you SO much for your comment and your support. It is SO tough to lose one of our own. I will send my thoughts and prayers out there into the universe for you and I believe April WILL be 5 years of remission for you.
    Big love from Saigon,
    Terri

  • Lori Marx-Rubiner • February 7, 2012

    Teri…I so admire what you’re doing. We are all devastated by the deaths of Rachel and Susan, but the we are ALL in this fight together, and the virtual embrace is palpable. Miss having you on #bcsm but love following your adventure as you seek to change the world.

  • Terri Wingham • February 8, 2012

    Lori,
    So happy to see your words. Your support and the support of the #bcsm community means the world to me. I feel so lucky to have met such a great group of amazing peeps and maybe I should make it my mission to meet all of you in person. I hope to see you one day soon.
    Big love from Saigon!
    Terri

  • Dawn Metcalf • February 7, 2012

    You never fail to inspire me! There aren’t enough or adequate words to express my gratitude for your courage; I sometimes feel like I am an extension of your beautiful eyes…through which I am witnessing true compassion in the world. You make me want to be a better human being Terry…

  • Terri Wingham • February 8, 2012

    Dawn,
    Thank you so much for taking the time to comment. Your words help give me strength. Knowing people like you are supporting my journey makes it easier to be fully present here. I’m so happy to have you along for the ride. I just spent the afternoon with the kids in the pediactric oncology ward. Although the conditions are intense, the children are so beautiful. So full of light and grace.
    Big love from Ho Chi Minh City (Saigon).
    Terri
    xo

  • Jo • February 7, 2012

    So beautiful and touching. I am a blubbery ball of emotion reading that post.

  • Terri Wingham • February 8, 2012

    So great to hear from you. I have been a blubbery ball of emotion for much of the past month. So intense, but so beautiful at the same time. I thought of you today as I rode around on the back of a motorbike (the preferred mode of transportation here). Maybe I could get my license and we could start a tough cancer chicks riding Harleys posse? The traffic at home would be nothing like the insanity here as I think driving here has CRAZY written all over it. Miss you my sweet cancer friend who I’m so grateful has turned into a true friend and kindred spirit.
    Hugs to you and look forward to catching up again soon.
    T
    xo

  • AnneMarie • February 7, 2012

    Terri,

    You inspire me every single day when I get out of my comfy bed and know that you are bearing witness on behalf of ALL of us to those who are so much less fortunate.

    How negatively serendipitous (I like that word, as you do, TOO much to have its connotation reflect in any poor light)…. You are discussing palliative care in HCM City and we are grieving the loss of Rachel and Susan.

    Love you Terri…. and JUST saw that you are meeting Phillipa in Hong Kong. I can’t wait for more pictures, Ms Pinterest….

    xoxoxox

  • Terri Wingham • February 8, 2012

    Hey Lovely,
    Thank you so much for your comment. It means the world to me to have your support. I completely understand your use of the word serendipitous for this situation. I was trying to write a different post when I heard the news of Susan and Rachel and knew I HAD to write this one. We really are ALL connected.
    Big love to you and YES, I’ll get on pinterest again soon.
    T
    xo

  • DebR • February 8, 2012

    Speechless, Emotional, Honoured
    My three words for you today Terri. You take me right along with you as you have the most amazing gift of words and description! I walk the halls of our cancer centre and I have the images of the cancer hospital that you provided. My gosh, so different and raw! Your strength to continue to combat your fears is as always INSPIRING to my soul for sure.
    Continue to travel safely (those scooters are crazy fun)

  • Terri Wingham • February 14, 2012

    Deb – In the chaos of getting from Vietnam to New Delhi, I’m behind on my responses. But, Thank YOU so much for your comment. I always love hearing from you and your three words made a big impact on me. Thank you! I will definitely continue to travel safely and I look forward to catching up over coffee this summer. I’m on the lookout for speaking opportunities to this fall and would love for you to let me know if you hear of anything! I’ll send you a proper email soon:) Terri

  • ButDoctorIHatePink • February 9, 2012

    What a lovely post. I just found your website and this was a great first introduction. As a woman who does have metastatic breast cancer, the death of Rachel really hit me hard. (I unfortunately had never “met” Susan.) I have emailed with Rachel and she was a commenter on my blog and I had no idea she was that close to the end.

    It is a very difficult situation, dealing with your own mortality. It is not something easy to escape, or go into denial about. That doctor sounds like he understands and I’m glad there are such people. I was quite surprised when I got a visit from the palliative care nurse about pain control long before I thought it was necessary – however, it’s nice to know my oncologist’s office is proactive, and I can only hope that other doctors, in all countries, care for their suffering people at the end.

  • Terri Wingham • February 14, 2012

    Ann,
    Thank you so much for your comment. Although I am a bit behind on reading everyone’s blogs – I have always loved your writing and your perspective. I can only imagine how difficult it is to deal with a metastatic diagnosis and I think Rachel’s death has reminded me how connected each of us are. Dr. Khanh left me so inspired with his ability to sit with people from a place of complete compassion. Big hugs from New Delhi and I look forward to reading your blog for A LONG time to come.
    Terri

  • Tami Boehmer • February 9, 2012

    I am so touched and impressed by how you are using your cancer experience to reach out and make a difference in the lives of people less fortunate than us! My friend Elyn Jacobs told me about you this summer, and she almost had me ready to book a plane to Africa!

    As someone who is metastatic, I can relate to the avoidance of the death topic. Yet I am faced with the reality every day, especially when I hear of yet another friend or fellow blogger who passed away too soon. How very brave of you to face this issue … and in foreign lands. You are a true pioneer on the path of compassion.

  • Weekly Round-Up « Journeying Beyond Breast Cancer • February 10, 2012

    […] week Terri is forcing us to face up the reality of death. It may seem strange that in a community like ours, […]

  • Julie Goodale • February 10, 2012

    Terri,
    Thank you for this beautiful and important post. After looking death too closely in the eyes from under the covers or the dark of our closet, most of us like to just put it aside. We so do not want to talk about it. But the sad fact is that, despite everyone’s heroic efforts, sometimes existing treatments are not enough. But it’s only by being honest about that that we can make any progress. Calming the fears of the newly diagnosed should never come at the cost of honesty about this terrible disease(s). Thank you for writing this.

    Julie

  • Terri Wingham • February 14, 2012

    Julie,
    Thank you so much for your comment and your beautiful imagery. Yes, too often we want to keep death under the covers or in the dark of our closets. I love how poetically you talk about the need for honesty. Thank you!
    Terri

  • The Secrets We Keep… | A Fresh Chapter • February 17, 2012

    […] & The Destitute. Yes, I felt nervous, but after meeting Dr. Khanh and having a crash course in compassion and palliative care, I was ready for anything. I could sit with people who were dying and hold their hands, wipe their […]

  • Harmala Gupta • February 27, 2012

    Dear Terri,

    Thank you for highlighting what Dr. Khanh is doing. We share the same dream at CanSupport in New Delhi, India, that he has: a world where people with cancer live free of pain and indignity. It is so inspiring to hear about what he has achieved. We applaud his efforts and his humanity.

  • Terri Wingham • March 1, 2012

    Thanks you Harmala,

    When you think of it, will you send me the saying on your bulletin board? I think you and Dr. Khanh are both such inspirations when it comes to helping people live the rest of their days free of pain and indignity. I will carry both of your work in my heart as I continue on my travels.

    Terri
    Xo

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